March 16, 2025
Topic: Let’s Talk About Down Syndrome
The Edmonton Down Syndrome Society (EDSS) began in 1988 when four families, inspired by their shared journey, started meeting to support one another and share information. Initially informal gatherings, the group grew into a registered charitable organization by 1995, hosting three national conferences for the Canadian Down Syndrome Society. EDSS has since launched impactful initiatives, including the Pediatric Down Syndrome Medical Clinic at the Stollery Children’s Hospital, which now serves over 600 children. In 2006, EDSS opened its Centre for Excellence, offering quality programming, therapies, and support for families across northern Alberta. Today, EDSS continues to collaborate with local, provincial, and national organizations to empower families and promote inclusion and is celebrating its 30th anniversary!
From the speaker, Julie Boucher:
I provide personalized support and guidance to individuals with Down syndrome and their families as they navigate various systems and services, including accessing government support such as guardianship, PDD, FSCD, and AISH, as well as advocating for support and accommodations in schools, childcare, and workplaces. I also deliver presentations to the community and schools to teach them more about the Down syndrome community and their abilities.
Guest Speaker: Julie Boucher
Service Leader: Katie Steppke
Musician: Janice Reynolds
Service Techs: Bill Lee, Hannah Dixon & Rebecca Patterson
We hope you enjoy this recording of our in-person and Zoom service.
Please feel free to share this recording link with your friends and on social media.
We hope to see you live and online, every Sunday, 10:30 AM MT. (Zoom “doors” open at 10 AM.)
